Our Mission:
Liam's Heart exists to:
1. Raise awareness of Williams Syndrome
2.Support hospital-based music therapy programs through grants
3.Provide scholarships to children and families interested in attending camps for children with Williams Syndrome, swimming lessons and to pursue music education in college
What is William's Syndrome?
Williams Syndrome (WS) is a genetic condition that is present at birth and can affect anyone. It is characterized by medical problems, including cardiovascular disease, developmental delays, and learning challenges. These often occur side by side with striking verbal abilities, highly social personalities, and an affinity for music. WS occurs equally in males and females and in all cultures worldwide.
Meet Liam
ABOUT US
Our Story
On February 25, 2021 our world's changed forever when our 10 month old son Liam passed away suddenly. After months of genetics testing, we learned that Liam suffered from a William's-like Syndrome.
We are dedicated to keeping Liam's memory and spirit alive. So, Liam's Heart, Inc. was founded. Liam's Heart, Inc. is a 501c3 non-profit organization dedicated to supporting families & children living with Williams Syndrome and similar conditions.
Every one who met him always made two observations: he was truly a beautiful baby and simply the happiest. Since day one, he had an affinity for music. Moana's "You're Welcome" would make him laugh over and over and he only learned to crawl by going after his music machine. We spent our mornings singing Sesame Street classics, but Elmo was a big part of all our days. He would wind his wrists and "dance" with such excitement.
Liam had such long hair from the day he was born and it just got longer and longer. It was always blocking his eyes, but he was never bothered. He had four teeth ( and two more just days away from popping through). He had just mastered drinking through a straw, but was a long-time pro at holding his own "baba" and using an open cup. To say he had a great appetite would be an understatement. We would say it's not what does he eat, it's what won't he eat. Pizza, falafel, pancakes, bagels, cream cheese, french toast, eggs, raspberries- everything he tried, he loved.
Liam could say "Dada" "Mama" and " Baba" and was just starting to say "Hi." He loved to bang his toys together and would knock on everything just to hear the sound. He was an incredible sleeper - giving us 12 hour nights from just a few weeks old. He loved high activity: lights, swings, slides, and his car toys. He was a high fashion guy with a different outfit for every occasion. He adored the outdoors: hiking, camping, the beach, stroller walks and just playing in the grass. Of all his activities, swimming was arguably his favorite. He lit up every week as we walked into Saf-T-Swim.
Liam filled each life he touched with joy, laughter, and love. We will continue to miss him more each and every day.